A Ray Of Sunshine

Thank you for all the wonderful support; We continue to receive emails, calls, texts, letters, cards and are really feeling the love. Its great. And more importantly, its working!!! The positivity is flowing and the girls are feeling it!

The last 48 hours have seen good news. Sara decided to draw a picture for the girls; Her drawing and creative skills remain incredible. She has coined the girls as the "tiny mights", as seen here. This picture hangs next to each of their pods in the NICU, and the nurses and doctors love it. 

Tiny Mights!

Today we said goodbye to two of our doctor "residents", Amy and Stephanie. They are moving over to the children's hospital in their normal "rotations". We are sad to see them go, as they have been instrumental players in our girls care. (We gave them cermonial "team tiny mights" cards to take with them). They are both exceptional individuals, and the level of care that our girls are receiving is incredible. Thanks ladies!

Without further a due, here is the good news:

Ashlyn: 

Showed very low fluid output overnight, almost none. While this does not necessarily mean her chylothorax condition has healed, its certainty a step in the right direction. She is off the Lasix and antibiotics, and is seeing improving oxygen uptake (meaning lower oxygen requirements). 

The big news is that today around 4pm she was extubated! They removed her breathing tube (for the first time in her short 14 day life), and she is now on CPAP and breathing somewhat on her own!! Awesome progress! Even better, they are talking about taking our her chest tube over the weekend! EPIC!

They are going to reintroduce feedings with Enfaport (low fat milk that doesn't aggravate the chylothorax) and we will hope that no fluid begin to re accumulate. They explained that if fluid starts to re accumulate (which means the chylothorax hasn't closed) that they would have to reinsert the chest tube, which would not be so good. 

However, we are going to keep the train rolling and hope and pray that introducing the feedings won't result in fluid, and that the Chylothorax is closed or closing. 

All in all, remarkable progress for our little girl. Lets keep it going!

Hanna:

Still good. She has ramped up to full feedings now, and is pounding down 30ML of Sara's breaks milk every 3 hours. They moved her feeding tube from her mouth to her nose (which she seems to like, not sure why).

She still has a slightly elevated heart rate, and no one is too concerned. Sara is doing Kangaroo care for 1-2 hours a day with her, and we have even put a micro Binky in her mouth a few times.

All in all, she's rocking her 2 week birthday today.....

We'll leave it with some humor tonight....Sara's sister Kathryn snapped this photo today, and the girls all got a good laugh at my rapidly receding hairline.....so much for for getting grey.

Go Team Tiny Mights!